We made it!

We started the the new year out right!  Brinkley was discharged from the hospital on New Years Day.  Our nephew Jamie and his fiance Stephanie drove Bryan to the hospital with the car bed in tow.  We made it home late that night and spent our first night with all four of us together at our house!  I have spent the last couple of days trying to dig out of all the mess we accumulated and taking both boys to doctor appointments.  

Our last appointment with the Cardiologist, Dr Raunikar, was on December 3rd and it ended with us in an ambulance on the way to PICU at GHS with a trip to MUSC to follow the next day.  Yesterday, January 3rd, we went back to see Dr R for our surgery follow up visit.  I must admit, I was a little nervous walking into his office.  There was the sneaky feeling that this visit could end the same way and we would start this unwelcome roller coaster ride again.  

Thankfully, that was not the case.  After two and a half hours of tests to establish new baselines for Brinkley we left.  We left in our car going to our house!  Thank you Lord!  

Brinkley is doing well and we will have several more follow up appointments next week.  Our biggest hurdle right now is getting back on track with his feedings.  I have been assured that it will come with time.  He has done a little better today and that has given me a little glimmer of hope.  

You probably will not hear much from me this weekend.  I'll be buried under all the junk in my house that has to be sorted and put away.  Oh the joys of an unexpected month long trip!  At least we came back with mended heart and a healthy baby boy!