Monday, July 29, 2013

Team Brinkley

September and October are going to be big months for Brinkley!  The little guy turns one on September 6th and of course we are going to celebrate.  One way that we are going to celebrate is by playing golf.  (Anyone who knows my boys should not be surprised about this!) A golf tournament is being planned to honor Brinkley and to raise money for his medical and therapeutic needs.  As details become available I will pass them on, but for now send us your contact information if you would like to play or possibly sponsor.  I'll put an interest list together and keep in touch with you.

October is Down Syndrome awareness month and is celebrated all across the country with Buddy Walks.  The Buddy Walk brings awareness to DS and helps to raise money for local support groups and activities for DS families.  This year we will be participating in both the Anderson and Greenville Buddy Walks.  Brinkley was the youngest participant at the Greenville Buddy Walk last year!  

We would love to have you be a part of Team Brinkley and walk with us!  You'll even get a super cool t-shirt!  The Greenville Buddy Walk will be October 6th and Anderson's is October 27th.  If you would like to be a part of Team Brinkley please contact us and we will get you the proper info. Team Brinkley's goal is to raise $250 per walk ($500 total).   Also, if you or your business would like to sponsor Team Brinkley we can use your help to provide a banner and t-shirts for the team.  We will gladly put your name and/or logo on the banner.  As soon as we get a designer, we'll get a sample shirt here and start taking sizes.  

The Holder's are excited about all the cool things coming up for Brinkley and we hope that you will be joining us!  

Here's the address to contact us at to be included in the mailing list or to get sponsorship information:

Sunday, July 28, 2013

Let's get caught up!

It's been a busy month for us and I am way behind in communicating with you all.  Brinkley was discharged from the hospital in Columbia on July 1st and we have had a couple of close calls since.  Thankfully, we were able to get things under control with visits to the Doctors office rather than the hospital.  One reason we have stayed on top of it is that we FINALLY have a nurse!  YEAH!!!!  

After two agencies failed to be able to provide us with a nurse we were picked up by another agency and they immediately had a nurse for us.   I can definitely see the hand of God in this and I am very interested to see how this all pans out.  Like I said, this is the third agency that we have met with.  Our current agency introduced us to one nurse and she worked with us a couple of days, but then decided that it was too long of a commute for her.  (I had anticipated this since she was coming from Abbeville.)  The next day a new nurse started and she has been with us for three weeks now.  

As I said, this is totally a God thing.  She and I have been talking a lot and getting to know each other.  I have been able to encourage her and she has been a big help to us.  In our conversations we discovered that she had applied with the first agency for our family.  This was before we realized that the agency was not going to be able to take Brinkley's case.  For me, that clarified that she is truly supposed to be with us as neither agency gave her identifying information about us, so she had no idea that she was applying for the same family through two different agencies.  On top of this, she only lives two and a half miles from us.

Brinkley is doing well in therapy and is very close to sitting on his own.  His OT is impressed with his fine motor skills and wants to start working with him twice a week.  Reese is also about to start OT to help him/us learn strategies to help him manage his anxiety and self control issues.  This is perfect timing as he will be starting Kindergarten next month.  Connie, our therapist, wants to work with us and his new teacher to help him be successful at home and school.  

This week we got Brinkley's six month assessment back from his early interventionist.  He proved to be progressing well with all of his skills.  Overall, he has about a 40% delay for his age.  With preemies you consider their adjusted age for a while.  Brinkley's adjusted age is seven months.  He only has about a 20% delay for his adjusted age.  He is one tough little guy and is working hard every day to learn and get stronger.

We have some exciting things coming up, so be on the look out tomorrow for details!