Saturday, September 6, 2014

Oh Happy Day

Today is quite the day around our house.  We're celebrating Brinkley's second birthday. 

What a journey we have been on over the last two years.  Through all of the uncertainty and craziness, we have been abundantly blessed.  It's hard to imagine our lives without Brinkley.  I think most people that meet him would agree with that statement.  His smiles and hugs can make the seriousness of the world fade away.  In those moments we are reminded that God is faithful, He loves His children, and He delights in blessing us.  

He continues to amaze and bless us with this little one.  During Brinkley's first year I spent most of my days clinging to the verse we had claimed for him: 

I could have never imagined all the things that were to follow, but God has been so faithful.  We have already seen our precious miracle touch the lives of many people.  If the doors that have been opened to us this far are any indication then Brinkley has A LOT more to come.  In his book "The Purpose Driven Life", Rick Warren says that God never wastes a hurt.  Brinkley's little life reminds me of the truth of that statement everyday.

After our roller coaster first year, you may wonder where we stand right now.  Here's a bit of a breakdown (as of our August doctor visits):

  • Approximately 20lbs
  • 27 inches long
  • Crawling (his own one legged style and army style)
  • Couch Cruising
  • Almost standing
  • Drinking from a straw
  • Eating baby food
  • Uses sign language (10+ signs)
  • Says Mama, Dada, Hey, Yeah, Bye Bye, and Hat
  • Loves the bath tub and swimming pool
  • Cardiac status: Great and seeing doctor every 6 months with no meds
  • Pulmonary status: Great and seeing doctor every 4 months with only PRN meds
  • Gastric status: Released from doctor 
  • Peds Surgery: Removed feeding tube in June and released from doctor
  • Neurology status: Seeing doctor every 6 months as a precaution no meds
  • Sleep Medicine: See doctor every 3-4 months with reduced settings on CPAP machine
  • Endocrinology: Hypothyroidism being treated with daily meds and seeing doctor every 3 months
  • ENT: Tonsils and adenoids removed in April and one ear has a tube.  Following us regularly to stay on top of potential hearing loss
  • Eye Doctor: Seeing doctor once a year as a precaution
  • Total surgeries 7 since birth 2 of them this year

As you can see, Brinkley is doing really well and has made so much progress.  We are currently waiting on some braces to be made for him.  His physical therapists think that these will help him walk independently fairly quickly.  Our goal is to having him walking confidently by Christmas.  

I am not sure what we did to deserve this incredible blessing.  Thank you Lord for allowing me to be a part of this story.  Happy Birthday Brinkley!

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